Breath for Amy
From time to time, I stumble across my frans accounts!! I enjoy getting to know ya guys, so I usually click on profiles who interacted 🙂 and I recently found, Emily’s Instagram, @eadams08. When I went to her account, the first picture was about her friend Amy; it broke my heart and I couldn’t help but just reach out to her!! So I emailed Emily asking for a way I could help and I’m reaching out to my frans for some support because together we can help!
I wanted to share Amy’s story with you, if you feel inclined to donate I also included the link! I donated $10 and I’m hoping that everyone who reads this can also donate a small amount because together we can make a difference in a young woman’s life.
“Massachusetts native Amy S. was diagnosed with Cystic Fibrosis at the age of 11, which is very unusual (children are usually diagnosed by age 2 or 3). Cystic Fibrosis (CF) is a genetic disease that causes progressive lung damage, persistent infections and eventually respiratory failure. Though she has been frequently hospitalized throughout her life since her diagnosis, Amy dedicated herself to her education, and to helping others in her career after her completing her degrees.
Amy graduated from Haverhill High School with high honors in 2004, then attended Loyola University in Maryland, earning a dual degree in Psychology and Writing in 2008. In 2010 she began studying for an advanced degree at the University of Massachusetts and earned a Masters in Counseling in 2012. During her entire career, Amy has worked to support children and adolescents in the community. She began her career working with adoptive and foster children, and is currently working with young adults with major mental illness. Her goals have been to ensure children have a future and are safe. She is an extremely intelligent and caring person, tirelessly working to help others. Now she requires our help.
At 32-years-old, Amy is in need of a double lung transplant due to the damage her lungs have sustained from her lifelong battle with CF. There is no cure for CF, but a lung transplant can extend a patient’s life and improve their health once their lungs become so damaged that they can only function at or below 30% of normal. Amy’s lung/oxygen capacity was estimated to be between 32%-40% up until about 2 weeks ago, when her health started to rapidly decline. She was hospitalized for coughing up blood due to damage in her lung and required surgery to stop the bleeding (not for the first time). The surgery went well, but then about a week ago she was developed severe pneumonia.
The existing damage plus the pneumonia made it too hard for her lungs to keep up with what her body needed, so her doctors transferred her to ICU and put her in an induced coma so they could put her on a ventilator. Less than 12 hours later, her doctors told her father that the transplant we had thought would be at least 6 months away had to happen as soon as possible because her lungs were much worse than they estimated. Her ICU nurse told her family that Amy is very healthy other than her lungs, and they expect she will do really well with the transplant.
The transplant process is invasive, physically demanding, and requires a minimum of six-months recovery time. After the surgery, Amy’s entire life will change: she will have to begin taking heavy doses of immunosuppressants, as well as a multitude of other medications for the rest of her life. She will have more frequent doctor’s appointments and tests during the recovery period as well.
During that projected minimum of six-months recovery time, Amy will not be able to work, and in addition to her normal living expenses, she will have significant medical costs. These expenses would be significant without the burden of major illness, but as a single woman supporting herself, these financial challenges fall well beyond her present income. Her friends and family have partnered with COTA, a 501(c)3 non-profit that has been around for 30 years, to help raise funds in Amy’s honor to help with a lifetime of transplant-related expenses.
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